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IBD RESEARCH GROUP

The Faroe Islands IBD cohort is a nationwide cohort of all patients diagnosed with CD, UC, or IBD Unclassified (IBDU) based on the Copenhagen Diagnostic Criteria on the Faroe Islands since 1960.

The cohort includes data regarding diagnosis, clinical characteristics, disease classification, medical and surgical treatment, and disease course. Patients have been identified retrospectively until 2009 using the Diagnosis Registry at the Faroese Genetic Biobank (Ilegusavnid) within the Public Health Sector of the Faroe Islands and prospectively from 2010 onwards.

All original patient files and diagnostic criteria have been scrutinized in each case as a guarantee for the reliability of the data collection. Diagnosing and treatment of IBD patients is centralized at the National Hospital of the Faroe Islands, which enables complete capture of patients as well as data on clinical follow-up.

Through the civil registration number, the cohort is linked with complete genealogical records and geographic locations of individuals and their ancestors in the genealogy registry, as well all personal data and health data from within the Faroese health care system. Approximately 500 IBD patients are alive and residing on the Faroe Islands.


 
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